We Help People With Muscular Dystrophy To Achieve More

Who is supported by MDA RIDE?

MDA RIDE is a charity organization that aims to provide support to people with muscular dystrophy. We organize the largest motorcycle charity event in Czechia and a public collection to benefit of people with muscular dystrophy who are associated with AMD ČR (Muscular Dystrophic Association In CZ), Parent Project, SMART-HELP, End Duchenne, or SMÁci and to support selected activities of those organizations.

AMD ČR brings together people with muscular dystrophy and other neuromuscular diseases and supports them. It helps them with social integration, provides the information they need to maintain the best possible life quality, and promotes improvements in multidisciplinary care. Performs educational activities and organizes reconditioning stays and sports events. Parent Project was founded by parents whose children were born with Duchenne/Becker muscular dystrophy or other rare early-age neuromuscular diseases. Parent Project brings those patients, their parents, and other family members together, promoting and defending their interests. It creates conditions for the improvement of their lives and better life quality, provides comprehensive care, and supports the availability of effective treatment. End Duchenne helps people who lose power due to Duchenne/Becker muscular dystrophy. It provides them access to support, specialist caregivers, and doctors. It raises awareness of their disease and defends the interests of those people. It strives to improve the quality of specialized care as well as the lives of patients and caregivers. SMÁci promotes, supports, and defends the interests of people with spinal muscular atrophy (SMA) and their families. They contribute to the life quality of people with SMA. It engages in providing professional care and support, as well as effective treatment. SMART-HELP organizes events for disabled children, youth, and their families. It is dedicated to public benefit activities that comprehensively support children and adults with disabilities as well as caregivers in their integration into mainstream society. It provides professional advisory services in dealing with challenges arising in connection with neuromuscular diseases.

At MDA RIDE, we believe everyone deserves the opportunity to live a full life, regardless of physical limitations. We are committed to raising awareness of muscular dystrophy and supporting people with this condition. Our mission is to help people with muscular dystrophy to achieve more. The most important objective of the MDA RIDE is to support people with muscular dystrophy. We obtain all our resources through fundraising and use the free help of many supporters. They all contribute to a positive change in the world we live. By contributing to our cause, you help people with muscular dystrophy fund compensation aids, rehabilitation, therapy, or assistance, make them happier, and help them live longer. On average, the MDA RIDE needs just 1.6% to cover its own costs for events and necessary external services. The net proceeds generated by the public collection flow entirely to individual people with muscular dystrophy and to support selected activities of organizations they are associated with. We have donated already CZK 10,001,113 to help individual people with muscular dystrophy and helped to finance 557 projects during our first fourteen years from 2009 to 2022.

But it’s not just about donations alone. Every year after the opening ceremony, at 14:00 PM, participants embark on a scenic parade ride through the streets of Prague, which takes them past some of the city’s most famous landmarks. For people with muscular dystrophy who are confined to a wheelchair during the year, this joint ride-out in the cars of our partners together with riders on motorcycles of all sizes and brands is a piece of freedom and light-heartedness.

The joint ride-out of riders on motorcycles of all sizes and brands involving people with muscular dystrophy in cars of partners at the 14th MDA RIDE 2022.

By donating to MDA RIDE, you make a significant difference in the lives of people with muscular dystrophy. There is no cure yet, but there are treatments available that effectively slow the progression of the disease. Maybe scientists will find a cure one day in the future. Those people will only have a chance if they remain alive until then.

The last 14th MDA RIDE raised 1,036,800 CZK. Thank you! We rely on your generosity to help us continue our mission.

Published by

Ladislav Poledna

MDA RIDE Committee member